Lyme disease (real name Borrelia) is a massive cause of permanent devastation worldwide and fatal outcomes in thousands upon hundreds of thousands of misdiagnosed patients. And according to studies, up to 14 percent of people on the planet may be with her. Like in Europe, it is up to 20 percent probability. (Source)
The following explains why this is not an obvious fact.
I am one of the people at the table, who in 4 years turned from a completely healthy person, a professional with a good job and regularly exercising and strong – into a broke disabled person who has difficulty eating and cannot put on his own socks. During that time, I gave more than 20 thousand USD for tests and doctor’s fees. I was in hematology departments, neurology departments, dozens of cardiologists, rheumatologists, immunologists, oncologists, pulmonologists, gastroenterologists, endocrinologists, vascular, angiologists, ENT, nephrologists, orthopedists… And I don’t remember what other specialists.
„Examples of the analyzes calculated for 2018 include: incidence – US 473,000/year, Germany 471,000/year, France 434,000/year and UK 132,000/year; prevalence – US 2.4 million, Germany 2, 4 million, France 2.2 million and UK 667,000; total infections – US 10.0 million, France 9.3 million and UK 2.8 million.World estimates for 2018 are: incidence 12.3 million/year; prevalence and burden of infection 262.0 million.“ (Source)
With these numbers, it simply means that every doctor around the world has not been able to guess that at least a few of his patients so far in his practice actually had the Borrelia bacteria in them. And it also means that each of us knows someone else who has this infection without even suspecting it. As I am and as are thousands of people around.
Hundreds of thousands of false negative tests due to a suppressed immune system
The mechanisms of Lyme disease often lead to suppression of the immune system of affected patients. This is especially visible in the early stages of the infection, when the Borrelia bacterium attacks the body. The ELISA tests that are used to diagnose the infection have low sensitivity when used in immunocompromised patients. This leads to a large number of false negative results that do not reflect the actual infection status of patients.
Only a Western blot test that showed bands in its results could possibly indicate the patient’s diagnosis.
The Western blot test is considered the gold standard for diagnosing Lyme disease. It uses the principle of immunoblotting to show the specific protein antibodies that the patient’s immune system produces in response to Borrelia infection. Only when certain „bands“ are seen in the results is the test considered positive for Lyme disease.
And this is where the global problem comes in. According to the CDC (from the US), a patient under investigation must have five positive bands to receive an official diagnosis. Millions of us are not so lucky. I already know many disabled people like me who only have two or even one band.
Western blot tests that show no bands in the results condemn hundreds of thousands of people to disability and death
In some countries like mine, many labs don’t show the bands. False-negative Western blot test results have serious implications for Lyme disease patients. They are not really negative. But this is how they are „interpreted“ by the laboratories. Every patient has an elevated value of some protein (usually p41). The lab technician sees this with his own eyes and with pure advice enters „Negative“ on the results because that’s just how he’s been trained.
Failure to diagnose the infection can lead to inappropriate or lack of treatment, leading to disease progression and serious health problems. Hundreds of thousands of patients face disability and even death due to inadequate diagnosis and treatment of Lyme disease. And the bad thing is that many people are prescribed absolutely inappropriate medications such as corticosteroids for a stroke, which further develops the infection. Every single antibiotic we take with a wrong diagnosis also worsens the condition.
Before the test, patients must undergo preparation by stimulating the immune system and breaking down Borrelia biofilms for a period of one month
To improve the accuracy of tests for Lyme disease, patients should undergo preparation before the tests are performed. This may include stimulation of the immune system using additional agents to break up Borrelia biofilms. This process is usually done for a period of one month before the tests are performed, increasing the likelihood of more accurate results.
A negative ELISA test has zero value in the diagnosis of Borrelia
False-negative ELISA test results are a serious problem in the diagnosis of Lyme disease. Because of their low sensitivity, these tests often fail to detect the infection in affected patients, leading to inappropriate or no treatment. Stop prescribing ELISA. Here’s why – a simple explanation – it doesn’t work.
Hundreds of thousands of people are slowly leaving this world
Inadequate interpretation of Lyme disease test results and erroneous tests are responsible for hundreds of thousands of cases of disability and even death worldwide. The lack of proper diagnosis and treatment poses a serious threat to the health and life of the affected persons.
Every doctor on the planet, regardless of his specialty, must recognize all the hundreds of non-specific symptoms of Borrelia
To improve the diagnosis of Lyme disease, all healthcare professionals must be familiar with the symptoms of the disease. Many of the symptoms of Lyme disease are nonspecific and can be overlooked or misinterpreted. Above I mentioned a list of all the specialists I have been to. And for all that money and ruined health and organs, I was often treated with arrogance and advice to take anti-depressants. Antidepressants do not cure Borrelia. I proved it.
Specific skin rashes are just a legend – the real percentage of people without them is huge, especially with European Borrelia species
The idea that all Lyme disease patients develop specific skin rashes is a myth. In fact, many patients do not show this symptom, especially with infections with European Borrelia species. This can lead to delayed or incorrect diagnosis of the disease. Or to no diagnosis for the rest of your life.
Doctors’ inability to recognize Borrelia and know how to prescribe adequate tests is disabling and killing people
Lack of education about Lyme disease can have serious consequences for affected patients. Incompetent diagnosis can turn active and healthy people into invalids. Most of the doctors have no idea of the real symptoms. They have (possibly) read textbooks that have decades of wrong and outdated information. And in fact, 99 percent of doctors who do not specialize in the field have probably never read a single text.
Finally, below (bottom of the page) I describe a list of potential symptoms. Not every person has every one of them.
List of diseases that have been reported in patients with Borrelia
Here is the original file with the collection of diseases that resulted from the infection. Each link inside the file uploaded on this page leads to the corresponding report.
The bad thing is that there are also many hematological, oncological, and autoimmune ones. All this is true and happens every day around.
Treatment – again, it’s not like the textbooks. All doctors should know this too
Anyone lucky enough to have an official diagnosis knows that they gave him a course of antibiotics and then sent him off to live his life. However many people with long-standing infections and poor condition have had no significant improvement (or even zero). There are a lucky few who are treated in a place where they receive repeated antibiotic therapy (not just one hospital admission, but several a year) that is not just one course. Some even years. They can share the real effects of the treatment and its speed. A course of antibiotics won’t cure anyone. Absolutely nobody. Just possibly a urinary infection. The real effects of the treatment and its duration are also not a secret. And this information is there. In many places. And in many more places. And this is about the extremely unreasonable doxycycline monotherapy (even for 28 days).
In fact, even 16 years of antibiotics are not enough
And what about a 16-year period of antibiotic treatment that can’t cope?
The article examines the long-term persistence of antigens and DNA of Borrelia burgdorferi in tissues. A patient with Lyme disease who was treated with antibiotics for 16 years is discussed. The patient dies and autopsy tissues are examined. The study found evidence of B. burgdorferi in the form of biofilms that are resistant to antibiotics.
List of potential Borrelia symptoms
This is just a small list of all the possible symptoms of Borrelia. Each infected person may have only one symptom, after a while two, after another year three, etc. Each person can have different symptoms and no two cases are the same.
- Easy fatigue
- Skipping heart
- Difficulty concentrating
- Problems with short-term memory
- Sleep problems
- Depression
- Irritability
- Anxiety
- Headache
- Shortness of breath
- Blurred vision
- Noise in the ears
- Dizziness
- Nausea
- Diarrhea
- Constipation
- Reflux
- Stomach ache
- Night sweats
- Hair loss
- Sore throat
- Difficulty swallowing
- Conjunctivitis
- Increased sensitivity to light or sound
- Difficulty concentrating
- Random pains in different parts of the body
- Or absence of any pains
- Bell’s palsy
- Meningitis
- Numbness in hands and feet
- Arthritis
- Dry skin
- Shivering
- Temperature
- Muscle pain
- Swollen lymph nodes
- Speech problems
- Balance issues
- Hormonal changes
- Developing Hashimoto’s
- Developing Diabetes
- Developing anything
And finally, after years, when the situation begins to deteriorate a lot, wrong diagnoses of serious diseases that have nothing to do with reality come again, and a person begins to enter various hospital wards. He can easily even get diagnoses from there. Many people receive and believe in them.
Carefully read the symptoms again. That way you’ll understand why millions of us are given antidepressants and the diagnosis is delayed for years, if anyone finds it at all.
Share this with everyone around so there is more chance of doctors reading it (and regular people too)
Information about the difficulties in diagnosing Lyme disease should be disseminated widely among the medical community and society as a whole. Improved awareness can improve the practice of diagnosis and treatment, saving lives and improving the quality of life of many people. This is the real pandemic no one is talking about. We cripples have no voice.
Every doctor can take three days of his life to read the reports around and the described cases of difficult-to-diagnose Borrelia and thus start saving human lives. The information is not secret. She has it. And please don’t do spinal taps on the blight to maim people even more. Find out about the chance of success with this diagnostic method.
To doctors:
If you don’t know exactly what is wrong with your patient because you can’t find the cause, I think you already have a good guide. You’ve probably had quite a few such patients by now.
I don’t know before COVID-19 what was the justification for not finding the real diagnosis of the infected. Now it’s much easier – „You have Long COVID, I can’t help you. Die slowly“. This is how I dried for years and continue to dry. I think that before COVID-19, diagnoses like „it’s in your head“ were more popular. We’ve all heard those hundreds of times.